There are several ways you can find a kidney cancer patient support group
- Your doctor or healthcare provider may be able to recommend a local or online patient support group.
- Hospitals and cancer centres often have their own groups for cancer patients.
- If you know other patients or their families, they may be able to recommend a group.
- You can search online. An excellent place to start is the Patient Organisations section of the IKCC website. Click here
- You can also search social media platforms such as Facebook, Twitter and Instagram.
Here is a step-by-step guide to help you find kidney cancer support groups on Facebook:
- Go to the search bar of your Facebook page and type in “Kidney Cancer ”.
- A list of groups will appear with a short summary of each indicating whether it is a private or public group, how many followers it has and how often it posts. Not all groups are registered charities but if they are it’s a good sign it’s a group you can trust.
- If you don’t find what you’re looking for, try other search terms such as:
• Kidney Cancer Support Groups
• Kidney Cancer Survivors
• Kidney Cancer Associations
Other options will appear as you search.
- You can also search “Cancer Support Groups” where you will find groups that support people living with any cancer.
Sadly, not all online groups are committed to creating supportive environments for patients and spreading reliable information. Be on the lookout for fake profiles, disinformation, predatory scams or miracle cures. Don’t hesitate to leave a group if you become suspicious or find it is making you more anxious.
Look for groups where members are genuinely committed to supporting each other and maximising the benefits of shared information.
If you find a group that feels right for you but you are not sure of its credibility, contact the IKCC and we will look into them for you.
If you are already part of a group that you would like to help grow, contact the IKCC so we can add your group to our recommended listings.
World Kidney Cancer Day would not be possible without the generous support of our industry partners. On behalf of the global kidney cancer community, we thank you.